Mission one of the Vasculitis Foundation. Support the patients with vasculitis and their caregivers. This chapter will pursue that mission in several ways.
Check out our chapter CALENDAR, and find out when the next meeting is planned. Karla and Meaghan both came away from the 2008 Symposium with the knowledge that "you are not alone." By associating with others who have vasculitis, or who know about it, you will be ahead of the game. Instead of stumbling in the dark, alone and afraid, this association with your peers can help shed some light on what is possibly one of the most traumatic experiences you may face. And yet, the focus here is not to dwell on our horrors and sorrows. Yes, we will shed many tears together, but we will also share our joys and triumphs. Better than anyone else in your life, the people who come together here will truly understand what you are going through. As patients or as caregivers, there are things we keep inside and cannot share except with others who have walked a mile in our shoes. Joseph is a caregiver, and recognizes that he cannot always understand what his daughter is going through. He also understands how the needs of caregivers are not always the same as the needs of patients. At the symposium, this issue was addressed in a special session. We saw everything from tough love to handing out tissues. While information is mostly focused on the patient, this site will grow to also include resources for caregivers and family affected by the vasculitis diagnosis.
Although it is not possible to study each individual type of vasculitis separately with limited resources, our hope is that information learned in studying several types of vasculitis will be beneficial for understanding and treating other types of vasculitis as well.
If you thought you were alone, then those days are over. If you want them to be. Others are here, and by participating at the chapter level in person as well as online, you will never have to be alone with this disease again. So grab your rubber ducky and come on in. The water is fine, the sharks have been sent away, and this pool party can last a lifetime. :o) Other Resources List of diseases | Vasculitis Foundation The VF has developed descriptions of the different types of vasculitis. This information includes a definition of each disease, symptoms, diagnostic tests, therapies, and prognosis. Additional information is available through links to other organizations. http://www.vasculitisfoundation.org/vasculitisdiseases |
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