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Form Awareness Coalitions

posted Feb 22, 2009, 4:38 PM by Joseph Carpenter
We can develop partnerships with other local foundations to share resources and manpower.

I am in communication with some other small non-profit groups that like us, are getting started with limited resources. By forming partnerships, we can make a louder noise and thus gain more and better visibility.

We can form or join something in New Mexico like what is being done on a national level by National Organization for Rare Disorders, Inc. (NORD). NORD, a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. http://www.rarediseases.org/

By combining our local efforts to increase awareness about rare disorders, we can attend health fairs, and form legislative coalitions to promote efforts to improve health care for patients with rare disorders, which by indirect association would improve health care for everyone. If the lowest common denominator is addressed, then all patients in New Mexico will benefit.