NMVasculitis.org

15days since
Next Chapter Meeting on July 15, 2010 at Range Cafe on Menaul

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Learn more about vasculitis: (these link to the Education page)

Vasculitis Overview | Behcet's Disease | Buerger’s Disease | Central Nervous System | Churg Strauss Syndrome | Cryoglobulinemia | Giant Cell Arteritis | Henoch-Schönlein Purpura | Hypersensitivity Vasculitis | Kawasaki Disease | Microscopic Polyangiitis | Polyarteritis Nodosa | Polymyalgia Rheumatica | Rheumatoid Vasculitis | Takayasu’s Arteritis | Wegener’s Granulomatosis

Quotable Quotes

  • Pills or Stairs? A man's health can be judged by which he takes two at a time - pills or stairs.  ~Joan Welsh
    Posted Jul 6, 2010 2:27 PM by Joseph Carpenter
  • Get Moving Lack of activity destroys the good condition of every human being, while movement and methodical physical exercise save it and preserve it.  ~Plato
    Posted Jul 6, 2010 12:13 PM by Joseph Carpenter
Showing posts 1 - 2 of 11. View more »

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Central NM Vasculitis Foundation Group
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Recent Announcements

  • For Meetings info, go to the Meetings Page http://sites.google.com/site/nmvasculitis/Home/support/meetings
    Posted Jul 6, 2010 12:15 PM by Joseph Carpenter
  • 2010 Eyewitness New 4 Health Fair 2010 Eyewitness New 4 Health Fair $600 to go...Would anyone like to donate the $600 booth fee so our chapter can attend this event as an Exhibitor? See below ...
    Posted Nov 30, 2009 1:44 PM by Joseph Carpenter
  • December 2009 we will go again to McAllisters Deli in Uptown The December 2009 meeting of the NM chapter of the Vasculitis Foundation will be on December 17th. This month, we are going again to McAllister's, in the Uptown Mall ...
    Posted Nov 26, 2009 1:52 PM by Joseph Carpenter
Showing posts 1 - 3 of 19. View more »

Chapter News is also posted in the CNMVF Blog, and local members with Email can get news mailed to them by the CNMVF Google Group.

Research News

  • Diabetes Research shows promise for better control of autoimmune B-cell disease triggers Potential preventative therapy for Type 1 diabetes"Public release date: 29-Apr-2009[ | E-mail | Share Share ]Contact: Alison Heathera.heather@garvan.org.au61-043-407-1326Research ...
    Posted Apr 29, 2009 4:59 PM by Joseph Carpenter
  • Health Care Forum Discusses Role Of Chronic Disease Management In Health Reform Article Date: 09 Apr 2009 - 0:00 PDT A bipartisan group of panelists on Tuesday at a health care forum agreed that managing and preventing chronic disease is essential to ...
    Posted Apr 10, 2009 10:13 AM by Joseph Carpenter
  • Wristbands Ease Nausea With Cancer Treatment ScienceDaily (Apr. 10, 2009) — Cancer patients who wore acupressure wristbands had much less nausea while receiving radiation treatment, making the bands a safe, low-cost addition to anti-nausea medication ...
    Posted Apr 10, 2009 9:39 AM by Joseph Carpenter
Showing posts 1 - 3 of 15. View more »
Welcome to the online home for the Central New Mexico Chapter of the Vasculitis Foundation. 

This website is a portal to information about vasculitis. What it is, and what you can do about it. 

While no one can know everything there is to know, together we can gradually add more resources to help fulfill the three part mission of the Vasculitis Foundation: Support, Awareness, and Research. On this site, you can learn about the condition known as vasculitis, and you will also find links out to other resources as well.

The purpose of this website is to provide information and support to vasculitis patients and caregivers in New Mexico. However, anyone who finds this site useful is very welcome.

To see what pages have changed recently, look for the "Recent Site Activity" links on the bottom of the left sidebar.

Background

The Vasculitis Foundation (VF) is the only international organization for patients with multiple types of autoimmune related vasculitis. Founded in 1986, VF provides patients and family members with practical information and coping strategies to live successfully with vasculitis.

Mission: The Vasculitis Foundation supports and empowers patients through education, awareness and research.

The Vasculitis Foundation represents a family of rare diseases known as vasculitis. If you are a patient with vasculitis, or a caregiver or friend of someone with vasculitis, you should learn more about vasculitis by visit their website and join today

You will not regret it. There are multiple benefits to joining, one of the best is the monthly newsletter which will alert you to breaking news about vasculitis treatments and stories about other patients. If you reach out, then you will come to understand that you are not alone.

The site you are reading also has a reprint of a Vasculitis Foundation Fact Sheet created by the VF.

The Central NM Chapter was founded in June 2008. This chapter exists as a partner with the international Vasculitis Foundation, as well as with The Churg Strauss Syndrome Association (CSSA), and any other vasculitis advocacy group, to spread awareness about autoimmune related vasculitis, and to provide local support to the patients and caregivers in New Mexico. All members of the Vasculitis Foundation who also live in New Mexico, automatically become members of this chapter.

There are a number of other support organizations you will find mentioned in these pages for specific types of vasculitis, and other conditions that can be related to vasculitis.

This chapter is new, and this site will continue to grow. The blog will grow. The calendar will grow. The resources will grow. You may even grow!

We have monthly meetings. You can learn more about where and when on the Meetings page and in the Calendar.

The point is, we will post information about local VF events, and we will link you to more information about vasculitis. See the CNMVF Blog for the most recent updates.

If you do not live in central NM, but do live in New Mexico, you may also participate, but please be aware we may not be able to schedule meetings in your town. Perhaps you would like to host a meeting? Contact the Vasculitis Foundation for more information, or Email Joseph Carpenter.

So, the purpose and intent of this web site is to be the place to get information about the Central NM Chapter of the Vasculitis Foundation. Whatever else this chapter will do online, it will link off of this site.

For the latest news, and tons of other stuff, see our CNMVF Blog.

To learn about vasculitis, see our Education page. It is full of links to good information.

What follows next on this page is a very important effort that needs your help. We are working to identify the good doctors who know how to diagnose and treat vasculitis in New Mexico. 

Please share what you know in the interest of helping out new patients like you are, or once were. 

NM Vasculitis Doctors List

To help others like yourself, please go now to the NM Vasculitis Doctors Form. We are collecting the names and contact information for doctors in NM who are already familiar with vasculitis. Even if you are not in NM, please fill in the form. Here is why I think you should... 

I am advocating this list of Vasculitis Doctors as a sort of directory or registry that can be maintained for the benefit of all vasculitis patients. At its most simple, it is nothing more than a contact list so people can reach out to a new doctor when they need one, and have some idea that these doctors will know what they are talking about. What makes this list special is that unlike the phone book, the names on this list will come from existing patients.

It has already proven useful as, thanks to you, I have been able to refer a few patients to doctors we know can handle the treatment of vasculitis. Imagine not knowing where to turn, then suddenly having someone show you the way. That is what this project is all about.

I will share this list with others like it at the national and international level, and then see that our portion is updated annually. 

Imagine having this kind of resource available when you travel. Ask yourself, "Where is the nearest qualified doctor to the place I am visiting?" Or, "What hospitals there can deal with my symptoms if an emergency arises?" These are real world situational problems you can help solve, and it starts with you filling in the NM Vasculitis Doctors form.  Please, go fill in the NM Vasculitis Doctors Form now.


Thanks!

Where can I find a physician?
To find a physician near you, visit:

  • American Medical Association's Doctor Finder at www.ama-assn.org
  • American Osteopathic Association's Find a D.O. guide at www.osteopathic.org
  • Talk with other patients who have your symptoms.
  • Share your good doctors with this chapter, and we will refer them to others.


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